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From the moment of Lia Lee’s birth in a Merced, California hospital, her parents — Hmong refugees from Laos—are confronted by cultural differences. When Lia begins having grand mal seizures, her parents see the condition as an indication of divine spirit having entered their child’s body. Lia’s physicians, however, call the condition severe epilepsy and attempt to coerce the Lees to follow their medical regimen. The clash that follows puts a child at risk and illustrates the difficulties of communication between cultures with firmly held beliefs.
PSB Book Club— From The Spirit Catches You and You Fall Down
Now with a new Afterword from the author
Winner of the National Book Critics Circle Award for Nonfiction
The Spirit Catches You and You Fall Down explores the clash between a small county hospital in California and a refugee family from Laos over the care of Lia Lee, a Hmong child diagnosed with severe epilepsy.
Lia's parents and her doctors both wanted what was best for Lia, but the lack of understanding between them led to tragedy. Winner of the National Book Critics Circle Award for Nonfiction, the Los Angeles Times Book Prize for Current Interest, and the Salon Book Award, Anne Fadiman's compassionate account of this cultural impasse is literary journalism at its finest.
Lia Lee 1982-2012
Lia Lee died on August 31, 2012. She was thirty years old and had been in a vegetative state since the age of four. Until the day of her death, her family cared for her lovingly at home.
“Superb, informal cultural anthropology--eye-opening, readable, utterly engaging.” —Carole Horn, The Washington Post Book World
“This is a book that should be deeply disturbing to anyone who has given so much as a moment's thought to the state of American medicine. But it is much more . . . People are presented as [Fadiman] saw them, in their humility and their frailty--and their nobility.” —Sherwin B. Nuland, The New Republic
“The Spirit Catches You and You Fall Down changed how doctors see themselves and how they see their patients. Anne Fadiman celebrates the complexity and the individuality of the human interactions that make up the practice of medicine while simultaneously pointing out directions for change and breaking readers' hearts with the tragedies of cultural displacement, medical limitations, and futile good intentions.” —Perri Klass, M.D., author of A Not Entirely Benign Procedure